Hutchinson-Gilford Progeria syndrome is a extremely rare childhood disease founded in 1886 by Jonathan Hutchinson. It is a disease where children at very young ages often start to develop aging features. It only happens in every one per eight million live births. I have never heard of this syndrome till a little while ago. When I first heard about this syndrome I did not think it was for real, I though it was a joke.. considering that I only heard about it on AOL news. When I finally saw pictures of people with this disease I realized that it was something serious. I was shocked .
Progeria is a genetic condition and usually runs in the family, it can not be inherited. You are born with it. There is no cure to this syndrome. Once you have it you most likely wont live past the young age of 13 however very few people do. Some people can live up to their late teens or 20's sometimes even early 40's. It depends on how bad your condition is. The reason why most people that have this syndrome die at the age of 13 is because there skin gets very old and can start to rot away and decay. Children that in reality are really 13 generally look like there 80 or 90 to other people.
Is there anyone else who just recently heard about this syndrome?
Below is a picture of someone who has Progeria syndrome.
I have knownn about this syndrome for a while and when I first heard about it I was shock to see how these children live their lives. I heard about this syndrome while watching a show on either TLC or Discovery Health. On this show there were teo children who had this syndrome and both of them had siblings. On of the childrens siblings were regular children and the other ones sister had the same syndrome. While watching this eposoide I also learned that there was a cure for the syndrome that was being tested to see if it really worked. On of the two children who happened to be great friends got the chance to go to the trial, but I don't know if it actually worked or not. I think that this syndrome prevents them being a child, but it also makes them cherish every part of being a child even more because they know that it won't last from. A childe with this syndrome could be 5 years old but is really in his or hers late 30's. With this syndrome you don't know what to expect and I hope that the test trials for the cure were successful.
ReplyDeleteI have never heard of this syndrome before. I never knew anything like this existed. It is scary to think of all the things in the world that we do not have any knowledge of. This is a terrible thing to be born with. I really hope one day they find a cure for this syndrome. Its terrible that a child would only possibly be able to live until they are 13. Its scary how deseases and things like this exist in the world.
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